Hemophilia caregiver burden in a low socioeconomic region of Turkey

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dc.authorid0000-0002-8968-9849en_US
dc.contributor.authorZengin Ersoy, Gizem
dc.contributor.authorErtekin, Mehtap
dc.contributor.authorDikme, Gürcan
dc.date.accessioned2023-10-18T12:35:25Z
dc.date.available2023-10-18T12:35:25Z
dc.date.issued2023en_US
dc.departmentFakülteler, Tıp Fakültesi, Dahili Tıp Bilimleri Bölümü, Çocuk Sağlığı ve Hastalıkları Ana Bilim Dalıen_US
dc.description.abstractObjective: This study aims to evaluate the caregiver burden of parents of hemophilia patients and related factors in the southeast region of Turkey, where access to a regular healthcare facility is more complicated than in other areas. Materials and methods: Twenty-six caregivers of patients with hemophilia were consecutively enrolled in this non-interventional study. Caregiver burden is measured using the "HemophiliaAssociated Caregiver Burden Scale" (HEMOCAB). Results: Hemophilia affects 65.4% of caregivers emotionally, and 92.3% feel the burden caused by financial problems related to hemophilia. The perception of the patients by caregivers was negative in the groups of low educational degree and unstable employment status (P = .037 and P = .017, respectively). The employment status and job changes influence the caregiver burden because of hemophilia (P = .034 and P = .001, respectively). The groups of those who spent greater than 5 hours for transportation to the hemophilia treatment center (HTC) had a higher burden (P = .001). Multiple linear regression analysis analyzed variables affecting HEMOCAB, frequency, and burden total scores. The model created with the burden total score was statistically significant (P = .047). Conclusion: The main factors affecting caregiver burden were educational status, working conditions, and economic difficulties, as well as the length of infusion times and transfer to HTCs. There is a need to develop socioeconomic policies related to these problems.en_US
dc.identifier.citationZengin Ersoy, G., Ertekin, M., Dikme, G. (2023). Hemophilia caregiver burden in a low socioeconomic region of Turkey. Turkish Archives of Pediatrics.en_US
dc.identifier.issn2757-6256
dc.identifier.scopus2-s2.0-85175740064
dc.identifier.scopusqualityQ3
dc.identifier.trdizinid1239597
dc.identifier.urihttps://hdl.handle.net/20.500.12939/4165
dc.identifier.wosWOS:001135582900004
dc.identifier.wosqualityN/A
dc.indekslendigikaynakWeb of Science
dc.indekslendigikaynakScopus
dc.indekslendigikaynakTR-Dizin
dc.indekslendigikaynakPubMed
dc.institutionauthorZengin Ersoy, Gizem
dc.language.isoen
dc.relation.ispartofTurkish Archives of Pediatrics
dc.relation.isversionof10.5152/TurkArchPediatr.2023.23129en_US
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.rightsinfo:eu-repo/semantics/openAccessen_US
dc.subjectCaregiver burdenen_US
dc.subjectSocioeconomic determinantsen_US
dc.subjectHemophiliaen_US
dc.titleHemophilia caregiver burden in a low socioeconomic region of Turkey
dc.typeArticle

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